Today was Alison's last swimming lesson for the winter session. They really didn't have much of a lesson today, it was mostly free play in the pool....practice what you have learned....unless the kids wanted to go down the big water slide. Guess what Alison wanted to do. She's been wanting to go down that slide since the very first class. There were some kids whose parents didn't even attempt to take them down. There was one who got up to the top and changed his mind and no amount of cajoling from mom and dad could get him to go down. And then there was Alison who couldn't get up the stairs fast enough and had a hard time waiting her turn when she got there. I think she (and daddy) went down a total of 5 times. As usual, she was upset when it was time to get out of the pool. Fortunately the next session of swim classes starts next week.
It's a little bit blurry, but here she is when she hit the water. Kevin is somewhere under the splash.
It never warmed up enough to go walking yesterday....I think we topped out around 18....but it was another gorgeous, sunny day today. And it was 30 degrees. And Alison woke up from her nap early. So we went for a walk. It was nice to get out and get some exercise. Hopefully, now that we're all healthy again, the weather will be agreeable enough to get back out on the sidewalks on a more regular basis. I miss my daily walks.
Our Signing Time video finally arrived today. I like it a lot and couldn't believe how fast the time seemed to go. It showed us 18 signs....eat, milk water, more, ball, want, bird, cat, dog, fish, flower, mom, dad, shoes, car, airplane, sleep and one more that I can't remember right now. Alison was able to do about 6 or 7. I thought that was pretty good for the first time. We had to watch the video several times, because even though Alison was playing rather than watching, she wouldn't let me turn it off! I figure we'll keep watching the video and Kevin and I will try to use the signs as much as we can, and hopefully she'll start signing more, too.
I wrote about this the the day we found out, but took the entry down out of respect for the family's privacy while they decided how public they wanted the news to be. One of our fetal surgery families just found out that their new baby, now 15 weeks gestation, also has SB. It was devastating news for the family and almost as upsetting for those of us who have come to know them as a result of our own SB diagnoses and decision to have fetal surgery. Most upsetting right now is the fact that, because of the ongoing clinical trial through the NIH, this family will most likely not have the opportunity to make their own decision on whether or not to do fetal surgery again. They can't even apply to be part of the trial because of their prior fetal surgery, which resulted in delivery before 37 weeks, thus making them ineligible (no one with a history of delivery before 37 weeks is eligible). Our doctor is proposing an amendment to the trial's protocol to allow them to be grandfathered in so they could pursue the surgery outside of the clinical trial, if they felt it was the way to go (and they have not automatically assumed fetal surgery would be the way to go), but it is going to be a very hard sell, and probably won't be accepted. We're planning to be part of a letter writing campaign in favor of the amendment. At any rate, any prayers or good thoughts you can spare for this family during this difficult time would be greatly appreciated.
And that's about all there is from here.
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